Typical Monday.
Posted by Xenu on Monday, September 22nd, 2008 at 12:37 pm in thoughts on ms / chronic illness

Typical Monday. has 5 Comments

  1. Nadja Tizer wrote:
    September 22nd, 2008 at 8:14 pm

    Oooh, I am not envious. We’ll see how long before that’s me. Relapse #2 in 6 months and now some prednisone. Good times.


  2. Xenu wrote:
    September 22nd, 2008 at 8:37 pm

    Hey Nadja,

    How are you doing?

    The injections are really not that bad, honest. I started Rebif last October, after having 2 relapses within the space of 3 months. It has made a positive difference in my life, as I’ve now been relapse free for 11 months.

    I am here if you have any questions about injections, etc.

    XO,
    Xenu


  3. tanya wrote:
    October 7th, 2008 at 11:40 pm

    i found out about your site from another blogger. she says you have ms too. so i visited. and wow. that picture is scary. i have MS too but i never had medications like that. all i had were those medications for my tremors and i had prednisone, though. but those syringes are scary. i’m 20 years old. enlighten me, please.


  4. Xenu wrote:
    October 14th, 2008 at 2:18 pm

    Hi Tanya,

    Glad you found my blog and thanks for commenting. It’s true; I also have MS. How long have you had it? And why are you not on any injectable medications?? Just prednisone is not sufficient to treat this disease; you are young and there are a lot of great meds on the market that can help you live longer, not get sick as often, and accumulate less disability as you go through life. If you have questions or want to talk about injectables and medications like Rebif, Avonex, Copaxone, Betaseron, etc., I will be more than happy to discuss them with you. You can feel free to comment here again, and/or to contact me at collapsingtrapezes at chemoisnotapony dot com (my email address).

    Take care and TTYS.

    Xenu


  5. tanya wrote:
    November 11th, 2008 at 10:39 am

    sorry for the delay too. i’ll visit your blog every now and then in case you have stories. and about medications, i’m not really taking any but i had before. but thanks.


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